Category Archives: Uncategorized

Since we last visited, I placed the final piece of the CDH1 puzzle and had my double mastectomy. So here is the last installment of this tale. The series finale, if you will. Mastectomy feels more personal, more vulnerable, and more intimate to discuss. However, I promised myself at the beginning of this journey thatContinue reading “Something off my chest”

Inspired by my chat with the beautiful sisters of BeetinGenes, I decided I would give an updated version of “what I eat”. Since I know that’s the topic that keeps you up at night. I am coming up on 19 months post-op and I still keep a lot of the same safe foods but haveContinue reading “Praise on Repeat”

Hi.  It’s been a while. To be honest, I didn’t know if I’d ever make another post. At some point people get weary hearing about your illness, you know? I never want to be *that* person. While I obsess over what I eat and drink and the new little oddities that life without a stomach hasContinue reading “Daily Provision”

In hindsight, my last post addressed when and how I eat but not so much as specifically what. When I was starting out on this journey I asked every seahorse I met “what do you eat…exactly”. My meal plan is ever changing. What I ate last month doesn’t always work this month and what someoneContinue reading “Just a spoonful of sugar”

November is stomach cancer awareness month. You may be as surprised as I was to learn stomach cancer is the fifth most common cancer type in the world. Who knew? I had a lot of people wonder why I’d take the radical option to remove my stomach when my 88 biopsies came back clean. ToContinue reading “Statistics”

I’m free!! I was discharged and sent home. Before anything, I have to acknowledge the goodness of God in giving me the absolute best nurses for my last few days in the hospital. Not having family around due to Covid, means relying on the nurses even that much more. Selina was able to be onContinue reading “Homeward Bound”

Where do I even begin to describe the last few days? The only logical place is at the beginning. This might be a little graphic, but hopefully gives future seahorses insight and is as honest as I can be.  SUNDAYSunday morning, a friend graciously drove me to NIH. I was supposed to arrive at 9:00am,Continue reading “See A Victory”

The last couple of days have been intense. I will write more about them later but just a preview: a fever, vomiting, passing out, bleeding incision site, an emergency EKG and chest X-rays are included. But one thing I am focusing on it such a simple need. I’m thirsty.  A drink of water, something soContinue reading “Something in the Water”

It’s hard to believe, but we are finally here. My surgery is scheduled for Monday morning and there is a lot to do to prepare. This will probably be a very boring post for those of you who are not in the process of or considering a TG, but feel free to read along!  FirstContinue reading “Drumroll, please”